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AUTHOR(S) Julia M. Gumy; Allison Silverstein; Erica C. Kaye (et al.)
AUTHOR(S) Azza Mohamed Fathy Attia; Hala Samir Ahmed El-husseiny; Rehab Abd El Aziz El Sayed Abd El Aziz
AUTHOR(S) Ashley N. Murphy; Ellie Bruckner; Linzy M. Pinkerton (et al.)
AUTHOR(S) Kate Pincock; Nicola Jonesa; Kifah Baniodeh (et al.)
AUTHOR(S) Cara Gallegos; Michael D. Aldridge; Kelley Connor (et al.)
Nearly 20% of children in the United States experience one or more chronic health conditions. Parents of a child with a special healthcare need (CSHCN) experience increased stress caring for a child with chronic illness. The purpose of this descriptive study is to describe stress in parents of a child with chronic illness during the COVID-19 pandemic. Parents of CSHCN (n = 34) were asked to fill out the Pediatric Inventory for Parents (PIP) and answer two questions related to caring for their child during the COVID-19 pandemic.
AUTHOR(S) Kelly P. Arbour-Nicitopoulos; Maeghan E. James; Sarah A. Moore (et al.)
This study examined the acute and longer-term impacts of the COVID-19 pandemic on the movement behaviours and health of children and youth with disabilities (CYD) in Canada. Eighty-six parents of CYD completed an online survey twice (May 2020 and November 2020). Interviews were completed with seven families in March 2021.
AUTHOR(S) Kerstin Monika Tönsing; Shakila Dada; Kirsty Bastable (et al.)
The worldwide Covid-19 pandemic has highlighted inequities faced by persons with complex communication needs (CCN) in accessing health information and education. This study reports on the perspectives of South African rehabilitation professionals regarding access to health information and education for youth with CCN. Two asynchronous online written focus groups were conducted with 15 rehabilitation professionals. Participants’ contributions were thematically analysed.
AUTHOR(S) Irene L. B. Oude Lansink; P. C. Carolien van Stam; Eline C. W. M. Schafrat (et al.)
Parents of children with spinal muscular atrophy (SMA) often struggle with the all-consuming nature of the demands of caring for a child with substantial physical needs. This paper aims to explore experiences, challenges and needs of parents of a child with SMA in a COVID-19 pandemic situation. Nineteen parents of 21 children (15 months to 13 years of age) with SMA types 1–3 participated in semi-structured interviews in June to July 2020. The interviews were analysed using inductive thematic analysis.
AUTHOR(S) Pınar Bekar; Münevver Erkul; Emine Efe
This study aimed to investigate the coronavirus anxiety and caregiving burden of parents of children with cancer during the COVID-19 outbreak. This descriptive and cross-sectional study, including 136 parents of children with cancer, was administered through an online survey at a university hospital from 1 to 31 January 2021. Participants completed a questionnaire form, the Zarit Caregiver Burden Scale and the Coronavirus Anxiety Scale.
AUTHOR(S) Revathi Raja; Ramya Uppuluri; Badira Parambil (et al.)
The clinical outcomes of COVID-19 infection in children with cancer have been variable worldwide. Therefore, we aimed to collect data from all regions in India through a national collaborative study and identify factors that cause mortality directly related to COVID-19 infection. Data was collected prospectively on children across India on cancer therapy and diagnosed with COVID-19 infections from 47 centers from April 2020 to October 2021. Information was recorded on the demographics, the number of children that required intervention, and the outcome of the infection. In addition, we analyzed the impact of the delta variant in 2021.
AUTHOR(S) Hala Abdullatif; Wafaa Elakel; Sherif Baroudy (et al.)
The coronavirus disease 2019 (COVID-19) pandemic has had considerable effects on health care services given the need for re-allocation of resources and interruption of medical care. COVID-19 poses a challenge to patients with liver disease who are at risk of infection and more severe disease course. The current study aimed to assess the incidence of COVID-19 in children with liver diseases and evaluate the extent to which health care delivery was affected during lockdown. This cross-sectional analytical study conducted at the Pediatric Hepatology Unit, Cairo University Children’s Hospital utilized a questionnaire to determine the incidence of COVID-19 in patients with liver diseases and the impact of COVID-19 on the patients’ liver condition and health care service delivery. A presumed score was implemented to identify patients with probable COVID-19.
AUTHOR(S) Mareike Fuerboeter; Johannes Boettcher; Claus Barkmann (et al.)
AUTHOR(S) Heidi L. Fritz
AUTHOR(S) Her Majesty Queen Mathilde
The COVID-19 pandemic prompted authorities and institutions around the world to adopt urgent measures of general application, including limiting social contact and shutting down public spaces to prevent spread of the virus. We now see clearly what had been insufficiently anticipated and planned for. Quarantine and other preventative measures often had painful consequences for those who already lead a more challenging life—the disadvantaged and the vulnerable, and those around them. In the context of the pandemic, parents and caregivers of children with disabilities or complex chronic disorders faced unprecedented, at times insurmountable dilemmas. Schools and residential care facilities closed their doors; non-acute management was severely disrupted. Parents and carers had to decide on their own whether to take their children out of care and return them to the family home, or leave them in the usual living environment, where visits and other social contacts were drastically reduced or prohibited.
AUTHOR(S) Dalia Zahaika; Diana Daraweesh; Sondos Shqerat (et al.)
COVID-19 has caused great changes in all aspects of life which affected all people especially vulnerable groups such as children with disabilities (CWD) and their families. This study aimed to examine the challenges facing caregivers of CWD during the pandemic, and to explore these challenges from various physical, social, psychological, and financial aspects. A cross-sectional design was conducted in Palestine, a total of 130 caregivers of CWD completed a survey consisting of demographic and clinical characteristics questionnaire and the short version of the burden scale for family caregivers (BSFC-s) between March and May 2021.
UNICEF Innocenti's Children and COVID-19 Library is a database collecting research from around the world on COVID-19 and its impacts on children and adolescents.
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