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Children and COVID-19 Research Library

UNICEF Innocenti's curated library of COVID-19 + Children research

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1 - 15 of 36
Global caregiver concerns of SARS-CoV-2 vaccination in children with cancer: a cross-sectional mixed-methods study.

AUTHOR(S)
Julia M. Gumy; Allison Silverstein; Erica C. Kaye (et al.)

Published: July 2022   Journal: Pediatric Hematology and Oncology
The objective of this study was to understand global caregiver concerns about SARS-CoV-2 vaccination for children with cancer and to provide healthcare providers with guidance to support parental decision-making. A co-designed cross-sectional mixed-methods survey was distributed to primary caregivers of children with cancer globally between April and May 2021 via several media. Caregivers were asked to rate the importance of vaccine-related questions and the median scores were ranked. Principal Component Analysis was conducted to identify underlying dimensions of caregiver concerns by World Bank income groups. Content analysis of free-text responses was conducted and triangulated with the quantitative findings. 627 caregivers from 22 countries responded to the survey with 5.3% (n = 67) responses from low-and-middle-income countries (LMIC). 184 caregivers (29%) provided free-text responses. Side effects and vaccine safety were caregivers’ primary concerns in all countries. Questions related to logistics were of concern for caregivers in LMIC.
Mothers' health practices regarding care of their epileptic children during restriction of COVID-19 outbreak

AUTHOR(S)
Azza Mohamed Fathy Attia; Hala Samir Ahmed El-husseiny; Rehab Abd El Aziz El Sayed Abd El Aziz

Published: July 2022   Journal: International Egyptian Journal of Nursing Sciences and Research
Currently, the COVID-19 is considered one of the most severe health problems in the world. One of the most important chronic diseases common among children that need treatment for a long time is epilepsy, whose provision of appropriate medical treatment at the time of Corona has become one of the most considerable difficulties facing society during the pandemic outbreak. The aim is to assess the health practices of the mothers regarding caring for their children with epilepsy during the COVID-19 outbreak. A descriptive design was utilized to perform the study. The Setting: The present study has performed the outpatient at the Psychological hospital, and Al-Naser Specialized Hospital for children in Port Said city, Egypt.
Cite this research | Open access | Vol.: 3 | Issue: 1 | No. of pages: 337-356 | Language: English | Topics: Health | Tags: care of disabled children, COVID-19 response, health services, lockdown, maternal care, social distance | Countries: Egypt
Parent satisfaction with the parent-provider partnership and therapy service delivery for children with disabilities during COVID-19: associations with sociodemographic variables

AUTHOR(S)
Ashley N. Murphy; Ellie Bruckner; Linzy M. Pinkerton (et al.)

Published: June 2022   Journal: Families, Systems, & Health
 The novel coronavirus disease 2019 (COVID-19) significantly disrupted therapy service delivery for children with disabilities and their families. Parents of children with disabilities have been particularly impacted as a large degree of responsibility has been placed on them to both manage and deliver therapies remotely. However, little is known regarding whether sociodemographic factors are associated with parents’ perceptions of therapy service delivery during COVID-19. This study explored the relationship between sociodemographic factors and parents’ satisfaction with therapies for children with disabilities during COVID-19. Two hundred seven parents of children with disabilities completed an online survey battery that included the Family-Provider Partnership Scale and sociodemographic characteristics and assessed their satisfaction with their child[ren]’s therapies during COVID-19.
COVID-19 and social policy in contexts of existing inequality: experiences of youth with disabilities in Ethiopia and Jordan

AUTHOR(S)
Kate Pincock; Nicola Jonesa; Kifah Baniodeh (et al.)

Published: June 2022   Journal: Disability & Society
This article explores the social policy implications of the COVID-19 pandemic for adolescents and young people with disabilities in Ethiopia and Jordan. The article draws on qualitative research interviews carried out in person between November and December 2019 and by phone between April and June 2020 with 65 young people with hearing, visual and physical impairments in urban settings in both countries, complemented by interviews with key informants in government and civil society organisations working with young people. Whilst in Jordan social policy on disability is more developed, and in Ethiopia, systems are still embryonic, the COVID-19 pandemic has increased the marginalisation of adolescents and young people with disabilities in both contexts as health, education and social protection systems have been slow to mobilise targeted support and address social exclusion. This article identifies social policy gaps in Ethiopia and Jordan that must be addressed in order to support young people with disabilities during crises.
Parenting a child with a chronic illness during a pandemic

AUTHOR(S)
Cara Gallegos; Michael D. Aldridge; Kelley Connor (et al.)

Published: May 2022   Journal: Journal of Pediatric Nursing

Nearly 20% of children in the United States experience one or more chronic health conditions. Parents of a child with a special healthcare need (CSHCN) experience increased stress caring for a child with chronic illness. The purpose of this descriptive study is to describe stress in parents of a child with chronic illness during the COVID-19 pandemic. Parents of CSHCN (n = 34) were asked to fill out the Pediatric Inventory for Parents (PIP) and answer two questions related to caring for their child during the COVID-19 pandemic.

Movement behaviours and health of children and youth with disabilities: impact of the 2020 COVID-19 pandemic

AUTHOR(S)
Kelly P. Arbour-Nicitopoulos; Maeghan E. James; Sarah A. Moore (et al.)

Published: May 2022   Journal: Paediatrics & Child Health

This study examined the acute and longer-term impacts of the COVID-19 pandemic on the movement behaviours and health of children and youth with disabilities (CYD) in Canada. Eighty-six parents of CYD completed an online survey twice (May 2020 and November 2020). Interviews were completed with seven families in March 2021.

Cite this research | Open access | Vol.: 27 | Issue: Supplement 1 | No. of pages: 66-71 | Language: English | Topics: Health | Tags: adolescent health, care of disabled children, child health, COVID-19 response, disabled children, lockdown, social distance | Countries: Canada
Health information and education needs for youth with complex communication needs during the Covid-19 pandemic: rehabilitation professionals’ perspectives

AUTHOR(S)
Kerstin Monika Tönsing; Shakila Dada; Kirsty Bastable (et al.)

Published: May 2022   Journal: Disability and Rehabilitation

The worldwide Covid-19 pandemic has highlighted inequities faced by persons with complex communication needs (CCN) in accessing health information and education. This study reports on the perspectives of South African rehabilitation professionals regarding access to health information and education for youth with CCN. Two asynchronous online written focus groups were conducted with 15 rehabilitation professionals. Participants’ contributions were thematically analysed.

‘This battle, between your gut feeling and your mind. Try to find the right balance’: Parental experiences of children with spinal muscular atrophy during COVID-19 pandemic

AUTHOR(S)
Irene L. B. Oude Lansink; P. C. Carolien van Stam; Eline C. W. M. Schafrat (et al.)

Published: April 2022   Journal: Child: Care, Health and Development

Parents of children with spinal muscular atrophy (SMA) often struggle with the all-consuming nature of the demands of caring for a child with substantial physical needs. This paper aims to explore experiences, challenges and needs of parents of a child with SMA in a COVID-19 pandemic situation. Nineteen parents of 21 children (15 months to 13 years of age) with SMA types 1–3 participated in semi-structured interviews in June to July 2020. The interviews were analysed using inductive thematic analysis.

Investigation of coronavirus anxiety and caregiving burden among the parents of children with cancer during the COVID-19 outbreak: a descriptive and cross-sectional study

AUTHOR(S)
Pınar Bekar; Münevver Erkul; Emine Efe

Published: April 2022   Journal: European Journal of Cancer Care

This study aimed to investigate the coronavirus anxiety and caregiving burden of parents of children with cancer during the COVID-19 outbreak. This descriptive and cross-sectional study, including 136 parents of children with cancer, was administered through an online survey at a university hospital from 1 to 31 January 2021. Participants completed a questionnaire form, the Zarit Caregiver Burden Scale and the Coronavirus Anxiety Scale.

Outcomes of COVID-19 in children with cancer – Report from the Indian pediatric oncology group (InPOG) COVID-19 registry in India

AUTHOR(S)
Revathi Raja; Ramya Uppuluri; Badira Parambil (et al.)

Published: March 2022   Journal: Pediatric Hematology Oncology Journal

The clinical outcomes of COVID-19 infection in children with cancer have been variable worldwide. Therefore, we aimed to collect data from all regions in India through a national collaborative study and identify factors that cause mortality directly related to COVID-19 infection. Data was collected prospectively on children across India on cancer therapy and diagnosed with COVID-19 infections from 47 centers from April 2020 to October 2021. Information was recorded on the demographics, the number of children that required intervention, and the outcome of the infection. In addition, we analyzed the impact of the delta variant in 2021.

Covid-19 pandemic in Egyptian children with liver diseases: incidence and impact on health care service delivery in a low/middle income country

AUTHOR(S)
Hala Abdullatif; Wafaa Elakel; Sherif Baroudy (et al.)

Published: January 2022   Journal: Arab Journal of Gastroenterology

The coronavirus disease 2019 (COVID-19) pandemic has had considerable effects on health care services given the need for re-allocation of resources and interruption of medical care. COVID-19 poses a challenge to patients with liver disease who are at risk of infection and more severe disease course. The current study aimed to assess the incidence of COVID-19 in children with liver diseases and evaluate the extent to which health care delivery was affected during lockdown. This cross-sectional analytical study conducted at the Pediatric Hepatology Unit, Cairo University Children’s Hospital utilized a questionnaire to determine the incidence of COVID-19 in patients with liver diseases and the impact of COVID-19 on the patients’ liver condition and health care service delivery. A presumed score was implemented to identify patients with probable COVID-19.

Quality of life and mental health of children with rare congenital surgical diseases and their parents during the COVID-19 pandemic

AUTHOR(S)
Mareike Fuerboeter; Johannes Boettcher; Claus Barkmann (et al.)

Published: November 2021   Journal: Orphanet Journal of Rare Diseases volume
COVID-19 has affected our society at large, particularly vulnerable groups, such as children suffering from rare diseases and their parents. However, the psychosocial influences of COVID-19 on these have yet to be investigated. As such, the study’s goal was to evaluate the health-related quality of life (HRQoL), quality of life (QoL), and mental health of children with rare congenital surgical diseases and their parents during the COVID-19 pandemic and lockdown measures. A survey of n=210 parents of children with rare congenital surgical diseases and a control group of n=88 parents of children without rare diseases was conducted cross-sectionally between April 2020 to April 2021. Data on HRQoL, QoL, and mental health was collected using standardized psychometric questionnaires for children and parents presenting to the pediatric surgery department at a university hospital.
Caregiving in quarantine: humor styles, reframing, and psychological well-being among parents of children with disabilities

AUTHOR(S)
Heidi L. Fritz

Published: November 2021   Journal: Journal of Social and Personal Relationships
Prior research links adaptive humor styles (affiliative and self-enhancing) with enhanced psychological well-being and maladaptive humor styles (aggressive and self-defeating) with worse psychological well-being, primarily through humor styles’ influence on individuals’ social interactions and efforts to positively reframe stressors. The present study examined the unique relation of each humor style with psychological well-being with a focus on understanding mechanisms of adjustment under highly stressful conditions. Ninety-nine parents of children with disabilities were surveyed at the beginning of the COVID-19 pandemic in the United States in March 2020, and 79 parents completed follow-up surveys in July 2020. As predicted, at T1, self-enhancing humor was associated with less psychological distress and greater family satisfaction, self-defeating humor was associated with greater distress, and aggressive humor was associated with lower family satisfaction. Moreover, affiliative humor predicted decreased psychological distress over time, whereas self-defeating humor predicted increased psychological distress and decreased family satisfaction over time. Relations were largely mediated by caregiver positive reappraisal, family efforts to reframe daily disability-related challenges, and negative social interactions. Future research should further examine the influence of caregiver humor styles on family dynamics, family reframing norms, and caregiving efficacy.
Parents of children with disabilities and the COVID-19 pandemic

AUTHOR(S)
Her Majesty Queen Mathilde

Published: August 2021   Journal: Developmental Medicine & Child Neurology

The COVID-19 pandemic prompted authorities and institutions around the world to adopt urgent measures of general application, including limiting social contact and shutting down public spaces to prevent spread of the virus. We now see clearly what had been insufficiently anticipated and planned for. Quarantine and other preventative measures often had painful consequences for those who already lead a more challenging life—the disadvantaged and the vulnerable, and those around them. In the context of the pandemic, parents and caregivers of children with disabilities or complex chronic disorders faced unprecedented, at times insurmountable dilemmas. Schools and residential care facilities closed their doors; non-acute management was severely disrupted. Parents and carers had to decide on their own whether to take their children out of care and return them to the family home, or leave them in the usual living environment, where visits and other social contacts were drastically reduced or prohibited.

Challenges facing family caregivers of children with disabilities during COVID-19 pandemic in Palestine

AUTHOR(S)
Dalia Zahaika; Diana Daraweesh; Sondos Shqerat (et al.)

Published: August 2021   Journal: Journal of Primary Care & Community Health

COVID-19 has caused great changes in all aspects of life which affected all people especially vulnerable groups such as children with disabilities (CWD) and their families. This study aimed to examine the challenges facing caregivers of CWD during the pandemic, and to explore these challenges from various physical, social, psychological, and financial aspects. A cross-sectional design was conducted in Palestine, a total of 130 caregivers of CWD completed a survey consisting of demographic and clinical characteristics questionnaire and the short version of the burden scale for family caregivers (BSFC-s) between March and May 2021.

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UNICEF Innocenti's Children and COVID-19 Library is a database collecting research from around the world on COVID-19 and its impacts on children and adolescents.

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COVID-19 & Children: Rapid Research Response

UNICEF Innocenti is mobilizing a rapid research response in line with UNICEF’s global response to the COVID-19 crisis. The initiatives we’ve begun will provide the broad range of evidence needed to inform our work to scale up rapid assessment, develop urgent mitigating strategies in programming and advocacy, and preparation of interventions to respond to the medium and longer-term consequences of the COVID-19 crisis. The research projects cover a rapid review of evidence, education analysis, and social and economic policies.