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Her Majesty Queen Mathilde
The COVID-19 pandemic prompted authorities and institutions around the world to adopt urgent measures of general application, including limiting social contact and shutting down public spaces to prevent spread of the virus. We now see clearly what had been insufficiently anticipated and planned for. Quarantine and other preventative measures often had painful consequences for those who already lead a more challenging life—the disadvantaged and the vulnerable, and those around them. In the context of the pandemic, parents and caregivers of children with disabilities or complex chronic disorders faced unprecedented, at times insurmountable dilemmas. Schools and residential care facilities closed their doors; non-acute management was severely disrupted. Parents and carers had to decide on their own whether to take their children out of care and return them to the family home, or leave them in the usual living environment, where visits and other social contacts were drastically reduced or prohibited.
Dalia Zahaika; Diana Daraweesh; Sondos Shqerat (et al.)
COVID-19 has caused great changes in all aspects of life which affected all people especially vulnerable groups such as children with disabilities (CWD) and their families. This study aimed to examine the challenges facing caregivers of CWD during the pandemic, and to explore these challenges from various physical, social, psychological, and financial aspects. A cross-sectional design was conducted in Palestine, a total of 130 caregivers of CWD completed a survey consisting of demographic and clinical characteristics questionnaire and the short version of the burden scale for family caregivers (BSFC-s) between March and May 2021.
Colleen Stiles-Shields; Tessa K. Kritikos; Monique M. Ridosh (et al.)
This study examined the impact of the COVID-19 pandemic on a national sample of adolescents and young adults (AYA) with spina bifida (SB) and parents of youth with SB. AYA with SB (15–25; n = 298) and parents of children with SB (n = 200) were recruited to complete an anonymous, online survey in English or Spanish. Participants provided information about demographic and condition characteristics, as well as their technology access and use for behavioral health care. They also completed the COVID-19 Exposure and Family Impact Survey (CEFIS), which includes Exposure, Impact, and Distress subscales. Exploratory correlations and t-tests were used to examine potential associations between CEFIS scores and demographic, medical, and access characteristics. Qualitative data from the CEFIS were analyzed using thematic analysis.
Yolanda Suarez-Balcazar; Mansha Mirza; Vanessa L. Errisuriz (et al.)
Melike Yavaş Celik
Eric Emerson; Zoe Aitken; Tania King (et al.)
Little is known about the exposure of youth with disability to cyber victimisation. This study aims to estimate the prevalence of peer cyber and non-cyber victimisation in a nationally representative sample of 14-year-old adolescents with and without disability and to determine whether gender moderates the relationship between disability and exposure to victimisation. Secondary analysis of data collected in Wave 6 of the UK's Millennium Cohort Survey on 11,726 14-year-old adolescents living in the UK.
S. M. Chafouleas; E. A. Iovino
Saijun Huang; Tao Sun; Yanna Zhu (et al.)
Mathilde Berard; Cécile Rattaz Rattaz; Marianne Peries (et al.)
Angela V. Dahiya; Elizabeth De Lucia; Christina G. McDonnell (et al.)
Screening and diagnostic assessments tools for autism spectrum disorder (ASD) are important to administer during childhood to facilitate timely entry into intervention services that can promote developmental outcomes across the lifespan. However, assessment services are not always readily available to families, as they require significant time and resources. Currently, in-person screening and diagnostic assessments for ASD are limited due to the COVID-19 pandemic and will continue to be a concern for situations that limit in-person contact. Thus, it is important to expand the modalities in which child assessments are provided, including the use of technology. This systematic review aims to identify technologies that screen or assess for ASD in 0–12 year-old children, summarizing the current state of the field and suggesting future directions.
Seung Eun McDevitt
In the wake of the COVID-19 outbreak, already limited services and resources for families of children with autism spectrum disorder (ASD) in China became even more scarce. This qualitative case study highlights one online parent education and training (PET) program developed during the pandemic to offer home-intervention strategies to parents of children with ASD in mainland China. This exploratory study sought to examine the emic perspectives of the trainers and parents who participated in the 12-week intensive training program while considering the cultural context in China and the transnational, remote nature of the program.
Sarah Bompard; Tommaso Liuzzi; Susanna Staccioli
Femke Bannink Mbazzi; Ruth Nalugya; Elizabeth Kawesa (et al.)
This paper reports a study with families of children with disabilities in Uganda during the Coronavirus pandemic in 2020, known as COVID-19. Families of children with disabilities in Uganda are well informed about COVID-19 and try to follow prevention measures. Families of children with disabilities have difficulties meeting daily basic needs as they were unable to work and had no income during the COVID-19 related lock down. The COVID-19 response affects access to health and rehabilitation services for children with disabilities in Uganda. Parents of children with disabilities struggle with home education and learning due to lack of access to accessible learning materials and learning support in Uganda. The COVID-19 response affects the peer support networks and social support for parents of children with disabilities in Uganda. Children with disabilities and their families should be involved and considered in the development and implementation of the COVID-19 response.
Applying the antitorture framework to the situation of people with disabilities during a pandemic is no simple task. Yet, it is an important one, perhaps most importantly in prompting states to prevent ongoing and future violations from occurring. This is an immensely complex legal undertaking, requiring cumulative assessments of legislation, emergency powers, public health policy and vast quantities of data, while also assessing the levels of harm that have been caused, or that could have been reasonably foreseeable. This process, which must remain grounded in international human rights law, necessarily gives rise to complicated questions of law, policy and ethics, and indeed the very scope of protection provided under international law. This anthology cannot answer all of these questions and does not purport to do so. Instead, its single purpose is to promote critical reflection, discussion and debate amongst legal communities and disability rights defenders. Some articles clearly open more questions than they answer, but it is our hope that this collection can stimulate greater levels of action to prevent and redress suffering in the weeks and months to come. It also serves as a launching pad for developing more sustainable, nondiscriminatory public policies which protect fundamental human rights, even during periods of crisis.
UNICEF Innocenti's Children and COVID-19 Library is a database collecting research from around the world on COVID-19 and its impacts on children and adolescents.
Read the latest quarterly digest on violence against children and women during COVID-19.
The first digest covers children and youth mental health under COVID-19.
Subscribe to updates on new research about COVID-19 & children
COVID-19 & Children: Rapid Research Response