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Children and COVID-19 Research Library

UNICEF Innocenti's curated library of COVID-19 + Children research

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16 - 30 of 43
Investigation of coronavirus anxiety and caregiving burden among the parents of children with cancer during the COVID-19 outbreak: a descriptive and cross-sectional study

AUTHOR(S)
Pınar Bekar; Münevver Erkul; Emine Efe

Published: April 2022   Journal: European Journal of Cancer Care

This study aimed to investigate the coronavirus anxiety and caregiving burden of parents of children with cancer during the COVID-19 outbreak. This descriptive and cross-sectional study, including 136 parents of children with cancer, was administered through an online survey at a university hospital from 1 to 31 January 2021. Participants completed a questionnaire form, the Zarit Caregiver Burden Scale and the Coronavirus Anxiety Scale.

Outcomes of COVID-19 in children with cancer – Report from the Indian pediatric oncology group (InPOG) COVID-19 registry in India

AUTHOR(S)
Revathi Raja; Ramya Uppuluri; Badira Parambil (et al.)

Published: March 2022   Journal: Pediatric Hematology Oncology Journal

The clinical outcomes of COVID-19 infection in children with cancer have been variable worldwide. Therefore, we aimed to collect data from all regions in India through a national collaborative study and identify factors that cause mortality directly related to COVID-19 infection. Data was collected prospectively on children across India on cancer therapy and diagnosed with COVID-19 infections from 47 centers from April 2020 to October 2021. Information was recorded on the demographics, the number of children that required intervention, and the outcome of the infection. In addition, we analyzed the impact of the delta variant in 2021.

Covid-19 pandemic in Egyptian children with liver diseases: incidence and impact on health care service delivery in a low/middle income country

AUTHOR(S)
Hala Abdullatif; Wafaa Elakel; Sherif Baroudy (et al.)

Published: January 2022   Journal: Arab Journal of Gastroenterology

The coronavirus disease 2019 (COVID-19) pandemic has had considerable effects on health care services given the need for re-allocation of resources and interruption of medical care. COVID-19 poses a challenge to patients with liver disease who are at risk of infection and more severe disease course. The current study aimed to assess the incidence of COVID-19 in children with liver diseases and evaluate the extent to which health care delivery was affected during lockdown. This cross-sectional analytical study conducted at the Pediatric Hepatology Unit, Cairo University Children’s Hospital utilized a questionnaire to determine the incidence of COVID-19 in patients with liver diseases and the impact of COVID-19 on the patients’ liver condition and health care service delivery. A presumed score was implemented to identify patients with probable COVID-19.

Quality of life and mental health of children with rare congenital surgical diseases and their parents during the COVID-19 pandemic

AUTHOR(S)
Mareike Fuerboeter; Johannes Boettcher; Claus Barkmann (et al.)

Published: November 2021   Journal: Orphanet Journal of Rare Diseases volume
COVID-19 has affected our society at large, particularly vulnerable groups, such as children suffering from rare diseases and their parents. However, the psychosocial influences of COVID-19 on these have yet to be investigated. As such, the study’s goal was to evaluate the health-related quality of life (HRQoL), quality of life (QoL), and mental health of children with rare congenital surgical diseases and their parents during the COVID-19 pandemic and lockdown measures. A survey of n=210 parents of children with rare congenital surgical diseases and a control group of n=88 parents of children without rare diseases was conducted cross-sectionally between April 2020 to April 2021. Data on HRQoL, QoL, and mental health was collected using standardized psychometric questionnaires for children and parents presenting to the pediatric surgery department at a university hospital.
Caregiving in quarantine: humor styles, reframing, and psychological well-being among parents of children with disabilities

AUTHOR(S)
Heidi L. Fritz

Published: November 2021   Journal: Journal of Social and Personal Relationships
Prior research links adaptive humor styles (affiliative and self-enhancing) with enhanced psychological well-being and maladaptive humor styles (aggressive and self-defeating) with worse psychological well-being, primarily through humor styles’ influence on individuals’ social interactions and efforts to positively reframe stressors. The present study examined the unique relation of each humor style with psychological well-being with a focus on understanding mechanisms of adjustment under highly stressful conditions. Ninety-nine parents of children with disabilities were surveyed at the beginning of the COVID-19 pandemic in the United States in March 2020, and 79 parents completed follow-up surveys in July 2020. As predicted, at T1, self-enhancing humor was associated with less psychological distress and greater family satisfaction, self-defeating humor was associated with greater distress, and aggressive humor was associated with lower family satisfaction. Moreover, affiliative humor predicted decreased psychological distress over time, whereas self-defeating humor predicted increased psychological distress and decreased family satisfaction over time. Relations were largely mediated by caregiver positive reappraisal, family efforts to reframe daily disability-related challenges, and negative social interactions. Future research should further examine the influence of caregiver humor styles on family dynamics, family reframing norms, and caregiving efficacy.
Parents of children with disabilities and the COVID-19 pandemic

AUTHOR(S)
Her Majesty Queen Mathilde

Published: August 2021   Journal: Developmental Medicine & Child Neurology

The COVID-19 pandemic prompted authorities and institutions around the world to adopt urgent measures of general application, including limiting social contact and shutting down public spaces to prevent spread of the virus. We now see clearly what had been insufficiently anticipated and planned for. Quarantine and other preventative measures often had painful consequences for those who already lead a more challenging life—the disadvantaged and the vulnerable, and those around them. In the context of the pandemic, parents and caregivers of children with disabilities or complex chronic disorders faced unprecedented, at times insurmountable dilemmas. Schools and residential care facilities closed their doors; non-acute management was severely disrupted. Parents and carers had to decide on their own whether to take their children out of care and return them to the family home, or leave them in the usual living environment, where visits and other social contacts were drastically reduced or prohibited.

Challenges facing family caregivers of children with disabilities during COVID-19 pandemic in Palestine

AUTHOR(S)
Dalia Zahaika; Diana Daraweesh; Sondos Shqerat (et al.)

Published: August 2021   Journal: Journal of Primary Care & Community Health

COVID-19 has caused great changes in all aspects of life which affected all people especially vulnerable groups such as children with disabilities (CWD) and their families. This study aimed to examine the challenges facing caregivers of CWD during the pandemic, and to explore these challenges from various physical, social, psychological, and financial aspects. A cross-sectional design was conducted in Palestine, a total of 130 caregivers of CWD completed a survey consisting of demographic and clinical characteristics questionnaire and the short version of the burden scale for family caregivers (BSFC-s) between March and May 2021.

We are anxious every day: COVID-19 impacts on youth with spina bifida 

AUTHOR(S)
Colleen Stiles-Shields; Tessa K. Kritikos; Monique M. Ridosh (et al.)

Published: August 2021   Journal: Journal of Pediatric Psychology

This study examined the impact of the COVID-19 pandemic on a national sample of adolescents and young adults (AYA) with spina bifida (SB) and parents of youth with SB. AYA with SB (15–25; n = 298) and parents of children with SB (n = 200) were recruited to complete an anonymous, online survey in English or Spanish. Participants provided information about demographic and condition characteristics, as well as their technology access and use for behavioral health care. They also completed the COVID-19 Exposure and Family Impact Survey (CEFIS), which includes Exposure, Impact, and Distress subscales. Exploratory correlations and t-tests were used to examine potential associations between CEFIS scores and demographic, medical, and access characteristics. Qualitative data from the CEFIS were analyzed using thematic analysis.

Impact of COVID-19 on the mental health and well-being of Latinx caregivers of children with intellectual and developmental disabilities

AUTHOR(S)
Yolanda Suarez-Balcazar; Mansha Mirza; Vanessa L. Errisuriz (et al.)

Published: July 2021   Journal: International Journal of Environmental Research and Public Health
The COVID-19 pandemic has impacted the entire world in unprecedented ways. However, populations that have had a history of marginalization have experienced a more profound impact. One such group is Latinx families of children with intellectual and developmental disabilities (IDD) in the Unites States. This study used a mixed methods approach to explore the impact of the pandemic on the mental health and well-being of Latinx caregivers of children with IDD. Specifically, it (1) identified which social determinants of health are correlated with maternal caregivers perceived general health, mental health, and well-being; (2) explored the impact of the pandemic on families’ overall eating and physical activity routines; and (3) identified emergent themes from caregivers’ experiences during the pandemic.
Assessment of have problems and care burdens of mothers with handicapped children in COVID-19 pandemic

AUTHOR(S)
Melike Yavaş Celik

Published: July 2021   Journal: Social Work in Public Health
In the study, it was aimed to evaluate the problems and care burden of mothers who have a handicapped child in the pandemic process. The population of the descriptive study consisted of the mothers of the children who came to the rehabilitation center (n = 230), and the sampling consisted of the mothers who wanted to participate in the study (n = 216). The research data were collected through social media and the data were analyzed using the mean, standard deviation, percentage and frequency measurements, independent sample t test, Oneway anova, Kruskal wallis tests in the SPSS program. In the study, Burden Interview Scale (BIS) scores of the mothers who stated that the educational status of their child was adversely affected in the pandemic, stated that they were worried that there would be someone to take care of my child if I died, stated that the child’s health checks were interrupted, stated that they did not send their child to school due to the fear of COVID-19, and reported that they had a problem in reaching the health institution was determined were significantly higher than. Mothers with handicapped children stated that their children experienced difficulties in important situations such as health checks and educations during the pandemic period. In addition, it was found that the care burden of these mothers was higher. During the pandemic period, it is necessary to make and support new regulations in accordance with the disability of these special children with state policies as well as healthcare professionals.
Boom boom in the zoom zoom room: online music therapy with children and adolescents with visual impairment

AUTHOR(S)
Bill Ahessy

Published: July 2021   Journal: British Journal of Visual Impairment
The COVID-19 pandemic created a major transformation in the delivery of music therapy services worldwide as they moved online. Telehealth research is in its infancy and online work with children and adolescents with visual impairment has yet to be investigated. This survey-based study explored the experiences and perceptions of parents of children and adolescents with visual impairment (n = 11) who engaged in online music therapy.
The association between disability and risk of exposure to peer cyber victimisation is moderated by gender: cross-sectional survey

AUTHOR(S)
Eric Emerson; Zoe Aitken; Tania King (et al.)

Published: July 2021   Journal: Disability and Health Journal

Little is known about the exposure of youth with disability to cyber victimisation. This study aims to estimate the prevalence of peer cyber and non-cyber victimisation in a nationally representative sample of 14-year-old adolescents with and without disability and to determine whether gender moderates the relationship between disability and exposure to victimisation. Secondary analysis of data collected in Wave 6 of the UK's Millennium Cohort Survey on 11,726 14-year-old adolescents living in the UK.

Comparing the initial impact of COVID-19 on burden and psychological distress among family caregivers of children with and without developmental disabilities

AUTHOR(S)
S. M. Chafouleas; E. A. Iovino

Published: April 2021   Journal: School Psychology
The current COVID-19 pandemic is presenting challenges for families, which may be exacerbated for caregivers of children with developmental disabilities (DDs; Center on the Developing Child, Stress, hope, and the role of science: Responding to the coronavirus pandemic, 2020). The purpose of this study was to explore caregiver burden and psychological distress among caregivers of children with DD as compared to caregivers of typically developing children across the United States as a result of COVID-19.
Impact of the COVID-19 pandemic on children with ASD and their families: an online survey in China

AUTHOR(S)
Saijun Huang; Tao Sun; Yanna Zhu (et al.)

Published: March 2021   Journal: Psychology Research and Behavior Management
The COVID-19 pandemic and lockdown will have short-term and long-term psychosocial and mental health implications for children. Children with autism may have some specific needs for support because of their difficulties in social communication, stereotyped behavior patterns, and other specificities brought about by autism. The purpose of this study was to investigate the impact of the COVID-19 pandemic on ASD children and their families.
Impact of containment and mitigation measures on children and youth with SD during the COVID-19 pandemic: report from the ELENA Cohort

AUTHOR(S)
Mathilde Berard; Cécile Rattaz Rattaz; Marianne Peries (et al.)

Published: February 2021   Journal: Journal of Psychiatric Research
Containment, involving separation and restriction of movement of people due to the COVID-19 pandemic, and mitigation, also referred to as lockdown, involving closure of schools, universities and public venues, has had a profound impact on people's lives globally. The study focuses on the effects of containment and mitigation measures, on the behavior of children and youth (CaY) with Autism Spectrum Disorders (ASD). The study primary aim was to examine the impact of these urgent measures on the behaviors, communication, sleep, and nutritional status of the CaY. A secondary aim was to explore risk and protective factors on behavior change including sociodemographic variables, living conditions, ASD symptom severity and continuity of interventions.
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UNICEF Innocenti's Children and COVID-19 Library is a database collecting research from around the world on COVID-19 and its impacts on children and adolescents.

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