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AUTHOR(S) Pınar Bekar; Münevver Erkul; Emine Efe
This study aimed to investigate the coronavirus anxiety and caregiving burden of parents of children with cancer during the COVID-19 outbreak. This descriptive and cross-sectional study, including 136 parents of children with cancer, was administered through an online survey at a university hospital from 1 to 31 January 2021. Participants completed a questionnaire form, the Zarit Caregiver Burden Scale and the Coronavirus Anxiety Scale.
AUTHOR(S) Revathi Raja; Ramya Uppuluri; Badira Parambil (et al.)
The clinical outcomes of COVID-19 infection in children with cancer have been variable worldwide. Therefore, we aimed to collect data from all regions in India through a national collaborative study and identify factors that cause mortality directly related to COVID-19 infection. Data was collected prospectively on children across India on cancer therapy and diagnosed with COVID-19 infections from 47 centers from April 2020 to October 2021. Information was recorded on the demographics, the number of children that required intervention, and the outcome of the infection. In addition, we analyzed the impact of the delta variant in 2021.
AUTHOR(S) Hala Abdullatif; Wafaa Elakel; Sherif Baroudy (et al.)
The coronavirus disease 2019 (COVID-19) pandemic has had considerable effects on health care services given the need for re-allocation of resources and interruption of medical care. COVID-19 poses a challenge to patients with liver disease who are at risk of infection and more severe disease course. The current study aimed to assess the incidence of COVID-19 in children with liver diseases and evaluate the extent to which health care delivery was affected during lockdown. This cross-sectional analytical study conducted at the Pediatric Hepatology Unit, Cairo University Children’s Hospital utilized a questionnaire to determine the incidence of COVID-19 in patients with liver diseases and the impact of COVID-19 on the patients’ liver condition and health care service delivery. A presumed score was implemented to identify patients with probable COVID-19.
AUTHOR(S) Mareike Fuerboeter; Johannes Boettcher; Claus Barkmann (et al.)
AUTHOR(S) Heidi L. Fritz
AUTHOR(S) Her Majesty Queen Mathilde
The COVID-19 pandemic prompted authorities and institutions around the world to adopt urgent measures of general application, including limiting social contact and shutting down public spaces to prevent spread of the virus. We now see clearly what had been insufficiently anticipated and planned for. Quarantine and other preventative measures often had painful consequences for those who already lead a more challenging life—the disadvantaged and the vulnerable, and those around them. In the context of the pandemic, parents and caregivers of children with disabilities or complex chronic disorders faced unprecedented, at times insurmountable dilemmas. Schools and residential care facilities closed their doors; non-acute management was severely disrupted. Parents and carers had to decide on their own whether to take their children out of care and return them to the family home, or leave them in the usual living environment, where visits and other social contacts were drastically reduced or prohibited.
AUTHOR(S) Dalia Zahaika; Diana Daraweesh; Sondos Shqerat (et al.)
COVID-19 has caused great changes in all aspects of life which affected all people especially vulnerable groups such as children with disabilities (CWD) and their families. This study aimed to examine the challenges facing caregivers of CWD during the pandemic, and to explore these challenges from various physical, social, psychological, and financial aspects. A cross-sectional design was conducted in Palestine, a total of 130 caregivers of CWD completed a survey consisting of demographic and clinical characteristics questionnaire and the short version of the burden scale for family caregivers (BSFC-s) between March and May 2021.
AUTHOR(S) Colleen Stiles-Shields; Tessa K. Kritikos; Monique M. Ridosh (et al.)
This study examined the impact of the COVID-19 pandemic on a national sample of adolescents and young adults (AYA) with spina bifida (SB) and parents of youth with SB. AYA with SB (15–25; n = 298) and parents of children with SB (n = 200) were recruited to complete an anonymous, online survey in English or Spanish. Participants provided information about demographic and condition characteristics, as well as their technology access and use for behavioral health care. They also completed the COVID-19 Exposure and Family Impact Survey (CEFIS), which includes Exposure, Impact, and Distress subscales. Exploratory correlations and t-tests were used to examine potential associations between CEFIS scores and demographic, medical, and access characteristics. Qualitative data from the CEFIS were analyzed using thematic analysis.
AUTHOR(S) Yolanda Suarez-Balcazar; Mansha Mirza; Vanessa L. Errisuriz (et al.)
AUTHOR(S) Melike Yavaş Celik
AUTHOR(S) Bill Ahessy
AUTHOR(S) Eric Emerson; Zoe Aitken; Tania King (et al.)
Little is known about the exposure of youth with disability to cyber victimisation. This study aims to estimate the prevalence of peer cyber and non-cyber victimisation in a nationally representative sample of 14-year-old adolescents with and without disability and to determine whether gender moderates the relationship between disability and exposure to victimisation. Secondary analysis of data collected in Wave 6 of the UK's Millennium Cohort Survey on 11,726 14-year-old adolescents living in the UK.
AUTHOR(S) S. M. Chafouleas; E. A. Iovino
AUTHOR(S) Saijun Huang; Tao Sun; Yanna Zhu (et al.)
AUTHOR(S) Mathilde Berard; Cécile Rattaz Rattaz; Marianne Peries (et al.)
UNICEF Innocenti's Children and COVID-19 Library is a database collecting research from around the world on COVID-19 and its impacts on children and adolescents.
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