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Serena Cesario; Consuelo Basile; Matteo Trevisan (et al.)
This study aimed to investigate the consequence of the COVID 19-related lockdown on the well-being of children with neurological and neurodevelopmental disorders and the repercussion on parental stress during the period 9 March 2020–3 May 2020. A web-based survey was shared via mail with the parents of children affected by chronic neurologic disorders and neurodevelopmental disorders in the continuity of care in two Italian tertiary centers, independently by the severity of the diseases and the required frequency of controls. For each patient, they were asked to identify a single main caregiver, among the two parents, to fill in the questionnaire. Parental stress was measured via the Perceived Stress Scale (PSS). Statistical analysis was performed with IBM SPSS Statistics version 25. The differences between the clinical groups were performed with one way ANOVA. The dimensional effect of the clinical variables on outcome was evaluated by multiple linear regression analysis.
Marina Charalampopoulou; Eun Jung Choi; Daphne J. Korczak (et al.)
Canadian province-wide lockdowns have challenged children’s mental health (MH) during the COVID-19 pandemic, with autistic children being at particular risk. The purpose of this study was to identify sub-groups of autistic children with distinct mental health change profiles, to understand the child-, parent-, and system-specific factors associated with such profiles in order to ultimately inform future interventions. Data were drawn from a large Canadian cohort (N=1,570) across Ontario, resulting in 265 autistic children (mean age=10.9 years, 76% male). K-means clustering analyses were employed to partition distinct MH profiles in six MH measures (mood, anxiety, OCD symptoms, irritability, inattention, hyperactivity) and group differences were examined with reference to the above factors.
Debra L. Reisinger; Elesia Hines; Christine Raches (et al.)
Minjie Ma; Xiao Wang; Peiyu Qi (et al.)
In early 2020, the COVID-19 pandemic emerged. To prevent the spread of the virus, China implemented restrictions on going out and ensured that people stayed at home. This study aims to investigate the affect and behaviors of children with intellectual disabilities (ID) during the lockdown. The informal coping strategies adopted by parents and their effects were further evaluated. In this study, a total of 457 parents of children (mean age: 14.82 years ± 1.96) with ID in 12 provincial administrative regions across China were surveyed online using the Positive and Negative Affect Scale and our own questionnaire on daily behaviors, problem behaviors and informal coping strategies.
Nurussakinah Daulay; Nefi Darmayanti
Imam Mujahid; Irwan Abdullah; Minsih (et al.)
The creation of good relations between family members during the COVID-19 pandemic is considered important to accommodate the learning needs of autistic children as during the pandemic, they are not able to learn optimally. This study aims to establish the role of family counseling in handling autistic children during at-home learning. The research uses a qualitative case study design. The informants were parents and core families of autistic children, and data collection involved interviews, observations, and documentation. The data analysis techniques employed were inductive analysis through reduction, data description, data coding, interpretation, and conclusions.
Jaishree Devi; Ananta Kumar Jena
Ching-Shu Tsai; Liang-Jen Wang; Ray C. Hsiao (et al.)
Melanie Heyworth; Simon Brett; Jacquiline den Houting (et al.)
Little is known about autistic parenthood. The literature that exists suggests that autistic parents can find it difficult to manage the everyday demands of parenting and domestic life. While emerging research has also highlighted more positive parenting experiences, greater understanding of autistic parenthood is needed. This study sought to understand autistic parents' parenting experiences during the initial phase of the COVID-19 pandemic. Thirty-five Australian autistic parents (95% women) of autistic children (aged 4–25 years) took part in semi-structured interviews designed to elicit their experiences of life during lockdown.
Jihyun Lee; Sean Healy; Justin A. Haegele (et al.)
It is increasingly recognized that children's physical activity behaviors are shaped by neighborhood environment factors and their parent's support. However, these factors have been scarcely studied among children with autism spectrum disorder (ASD), a population at risk of inactivity. This cross-sectional survey study was designed to examine how neighborhood environmental factors and parental support are related to physical activity levels of children with ASD. Also, this study examined if the relationship between the environment and physical activity is modified by demographic factors and COVID-19 related concerns.
Heather Agazzi; Holland Hayford; Nicholas Thomas (et al.)
Stéphanie Pinel-Jacquemin; Amalia Martinez; Maud Martinasso (et al.)
Families with young children have faced serious challenges during the first lockdown as a result of the COVID-19 pandemic. In addition to remote working, parents have had to monitor their children’s schoolwork and manage their daily lives. When one of the children also has neuro-developmental disorders, this results in an increased burden. We can therefore wonder how these families with one or more young children (under 6 years old) with special needs have experienced and dealt with this lockdown. In this context, the “COVJEUNENFANT” study focused more specifically on the subjective experience, as a parent, of those who cared for children with special needs (i.e., with developmental disorders, neurodevelopmental disorders, proven disabilities or chronic health conditions) compared to the general population. It aimed to see if the consequences of the health crisis were significantly different from those perceived by respondents in the general population (n = 490) and if the sociodemographic structure of these families differed from those of other respondents.
Maria Melchior; Katharine Barry; David Cohen (et al.)
Screen media use in early childhood has largely increased in recent years, even more so during the COVID-19 epidemic, and there is much discussion regarding its influence on neurodevelopment, including Autism Spectrum Disorder (ASD). This study examined the relationship between use of TV, computer, tablet and smartphone at age 2 years and risk of ASD assessed in telephone-based questionnaires among 12,950 children participating in the nationally representative ELFE (‘Etude Longitudinale Française sur les Enfants’) birth cohort study in France.
Saeed Ahmed; Aunsa Hanif; Ikram Khaliq (et al.)
This review summarizes evidence pertaining to the impact of the COVID-19 pandemic on the psychological health of children and adolescents with autism spectrum disorder (ASD). An electronic search was conducted using four major databases: PubMed, ScienceDirect, Web of Science, and Google Scholar. Using an umbrella methodology, the reference lists of relevant papers were reviewed, and citation searches were conducted. The study included articles written in English between January 2020 and March 2021 that focused on the psychological health of autistic children and adolescents.
Brad Hatton; Lauren Powell
UNICEF Innocenti's Children and COVID-19 Library is a database collecting research from around the world on COVID-19 and its impacts on children and adolescents.
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