search advanced search
UNICEF Innocenti
Office of Research-Innocenti
search menu

Children and COVID-19 Research Library

UNICEF Innocenti's curated library of COVID-19 + Children research

RESULTS:   32     SORT BY:

ADVANCED SEARCH:

Select one or more filter options and click search below.

PUBLICATION DATE:
UNICEF Innocenti Publication
UNICEF Publication
Open Access
JOURNAL ACCESS FOR UNICEF STAFF CONTACT US
1 - 15 of 32
Parenting a child with a chronic illness during a pandemic

AUTHOR(S)
Cara Gallegos; Michael D. Aldridge; Kelley Connor (et al.)

Published: May 2022   Journal: Journal of Pediatric Nursing

Nearly 20% of children in the United States experience one or more chronic health conditions. Parents of a child with a special healthcare need (CSHCN) experience increased stress caring for a child with chronic illness. The purpose of this descriptive study is to describe stress in parents of a child with chronic illness during the COVID-19 pandemic. Parents of CSHCN (n = 34) were asked to fill out the Pediatric Inventory for Parents (PIP) and answer two questions related to caring for their child during the COVID-19 pandemic.

Movement behaviours and health of children and youth with disabilities: impact of the 2020 COVID-19 pandemic

AUTHOR(S)
Kelly P. Arbour-Nicitopoulos; Maeghan E. James; Sarah A. Moore (et al.)

Published: May 2022   Journal: Paediatrics & Child Health

This study examined the acute and longer-term impacts of the COVID-19 pandemic on the movement behaviours and health of children and youth with disabilities (CYD) in Canada. Eighty-six parents of CYD completed an online survey twice (May 2020 and November 2020). Interviews were completed with seven families in March 2021.

Cite this research | Open access | Vol.: 27 | Issue: Supplement 1 | No. of pages: 66-71 | Language: English | Topics: Health | Tags: adolescent health, care of disabled children, child health, COVID-19 response, disabled children, lockdown, social distance | Countries: Canada
Health information and education needs for youth with complex communication needs during the Covid-19 pandemic: rehabilitation professionals’ perspectives

AUTHOR(S)
Kerstin Monika Tönsing; Shakila Dada; Kirsty Bastable (et al.)

Published: May 2022   Journal: Disability and Rehabilitation

The worldwide Covid-19 pandemic has highlighted inequities faced by persons with complex communication needs (CCN) in accessing health information and education. This study reports on the perspectives of South African rehabilitation professionals regarding access to health information and education for youth with CCN. Two asynchronous online written focus groups were conducted with 15 rehabilitation professionals. Participants’ contributions were thematically analysed.

‘This battle, between your gut feeling and your mind. Try to find the right balance’: Parental experiences of children with spinal muscular atrophy during COVID-19 pandemic

AUTHOR(S)
Irene L. B. Oude Lansink; P. C. Carolien van Stam; Eline C. W. M. Schafrat (et al.)

Published: April 2022   Journal: Child: Care, Health and Development

Parents of children with spinal muscular atrophy (SMA) often struggle with the all-consuming nature of the demands of caring for a child with substantial physical needs. This paper aims to explore experiences, challenges and needs of parents of a child with SMA in a COVID-19 pandemic situation. Nineteen parents of 21 children (15 months to 13 years of age) with SMA types 1–3 participated in semi-structured interviews in June to July 2020. The interviews were analysed using inductive thematic analysis.

Investigation of coronavirus anxiety and caregiving burden among the parents of children with cancer during the COVID-19 outbreak: a descriptive and cross-sectional study

AUTHOR(S)
Pınar Bekar; Münevver Erkul; Emine Efe

Published: April 2022   Journal: European Journal of Cancer Care

This study aimed to investigate the coronavirus anxiety and caregiving burden of parents of children with cancer during the COVID-19 outbreak. This descriptive and cross-sectional study, including 136 parents of children with cancer, was administered through an online survey at a university hospital from 1 to 31 January 2021. Participants completed a questionnaire form, the Zarit Caregiver Burden Scale and the Coronavirus Anxiety Scale.

Outcomes of COVID-19 in children with cancer – Report from the Indian pediatric oncology group (InPOG) COVID-19 registry in India

AUTHOR(S)
Revathi Raja; Ramya Uppuluri; Badira Parambil (et al.)

Published: March 2022   Journal: Pediatric Hematology Oncology Journal

The clinical outcomes of COVID-19 infection in children with cancer have been variable worldwide. Therefore, we aimed to collect data from all regions in India through a national collaborative study and identify factors that cause mortality directly related to COVID-19 infection. Data was collected prospectively on children across India on cancer therapy and diagnosed with COVID-19 infections from 47 centers from April 2020 to October 2021. Information was recorded on the demographics, the number of children that required intervention, and the outcome of the infection. In addition, we analyzed the impact of the delta variant in 2021.

Covid-19 pandemic in Egyptian children with liver diseases: incidence and impact on health care service delivery in a low/middle income country

AUTHOR(S)
Hala Abdullatif; Wafaa Elakel; Sherif Baroudy (et al.)

Published: January 2022   Journal: Arab Journal of Gastroenterology

The coronavirus disease 2019 (COVID-19) pandemic has had considerable effects on health care services given the need for re-allocation of resources and interruption of medical care. COVID-19 poses a challenge to patients with liver disease who are at risk of infection and more severe disease course. The current study aimed to assess the incidence of COVID-19 in children with liver diseases and evaluate the extent to which health care delivery was affected during lockdown. This cross-sectional analytical study conducted at the Pediatric Hepatology Unit, Cairo University Children’s Hospital utilized a questionnaire to determine the incidence of COVID-19 in patients with liver diseases and the impact of COVID-19 on the patients’ liver condition and health care service delivery. A presumed score was implemented to identify patients with probable COVID-19.

Quality of life and mental health of children with rare congenital surgical diseases and their parents during the COVID-19 pandemic

AUTHOR(S)
Mareike Fuerboeter; Johannes Boettcher; Claus Barkmann (et al.)

Published: November 2021   Journal: Orphanet Journal of Rare Diseases volume
COVID-19 has affected our society at large, particularly vulnerable groups, such as children suffering from rare diseases and their parents. However, the psychosocial influences of COVID-19 on these have yet to be investigated. As such, the study’s goal was to evaluate the health-related quality of life (HRQoL), quality of life (QoL), and mental health of children with rare congenital surgical diseases and their parents during the COVID-19 pandemic and lockdown measures. A survey of n=210 parents of children with rare congenital surgical diseases and a control group of n=88 parents of children without rare diseases was conducted cross-sectionally between April 2020 to April 2021. Data on HRQoL, QoL, and mental health was collected using standardized psychometric questionnaires for children and parents presenting to the pediatric surgery department at a university hospital.
Caregiving in quarantine: humor styles, reframing, and psychological well-being among parents of children with disabilities

AUTHOR(S)
Heidi L. Fritz

Published: November 2021   Journal: Journal of Social and Personal Relationships
Prior research links adaptive humor styles (affiliative and self-enhancing) with enhanced psychological well-being and maladaptive humor styles (aggressive and self-defeating) with worse psychological well-being, primarily through humor styles’ influence on individuals’ social interactions and efforts to positively reframe stressors. The present study examined the unique relation of each humor style with psychological well-being with a focus on understanding mechanisms of adjustment under highly stressful conditions. Ninety-nine parents of children with disabilities were surveyed at the beginning of the COVID-19 pandemic in the United States in March 2020, and 79 parents completed follow-up surveys in July 2020. As predicted, at T1, self-enhancing humor was associated with less psychological distress and greater family satisfaction, self-defeating humor was associated with greater distress, and aggressive humor was associated with lower family satisfaction. Moreover, affiliative humor predicted decreased psychological distress over time, whereas self-defeating humor predicted increased psychological distress and decreased family satisfaction over time. Relations were largely mediated by caregiver positive reappraisal, family efforts to reframe daily disability-related challenges, and negative social interactions. Future research should further examine the influence of caregiver humor styles on family dynamics, family reframing norms, and caregiving efficacy.
Parents of children with disabilities and the COVID-19 pandemic

AUTHOR(S)
Her Majesty Queen Mathilde

Published: August 2021   Journal: Developmental Medicine & Child Neurology

The COVID-19 pandemic prompted authorities and institutions around the world to adopt urgent measures of general application, including limiting social contact and shutting down public spaces to prevent spread of the virus. We now see clearly what had been insufficiently anticipated and planned for. Quarantine and other preventative measures often had painful consequences for those who already lead a more challenging life—the disadvantaged and the vulnerable, and those around them. In the context of the pandemic, parents and caregivers of children with disabilities or complex chronic disorders faced unprecedented, at times insurmountable dilemmas. Schools and residential care facilities closed their doors; non-acute management was severely disrupted. Parents and carers had to decide on their own whether to take their children out of care and return them to the family home, or leave them in the usual living environment, where visits and other social contacts were drastically reduced or prohibited.

Challenges facing family caregivers of children with disabilities during COVID-19 pandemic in Palestine

AUTHOR(S)
Dalia Zahaika; Diana Daraweesh; Sondos Shqerat (et al.)

Published: August 2021   Journal: Journal of Primary Care & Community Health

COVID-19 has caused great changes in all aspects of life which affected all people especially vulnerable groups such as children with disabilities (CWD) and their families. This study aimed to examine the challenges facing caregivers of CWD during the pandemic, and to explore these challenges from various physical, social, psychological, and financial aspects. A cross-sectional design was conducted in Palestine, a total of 130 caregivers of CWD completed a survey consisting of demographic and clinical characteristics questionnaire and the short version of the burden scale for family caregivers (BSFC-s) between March and May 2021.

We are anxious every day: COVID-19 impacts on youth with spina bifida 

AUTHOR(S)
Colleen Stiles-Shields; Tessa K. Kritikos; Monique M. Ridosh (et al.)

Published: August 2021   Journal: Journal of Pediatric Psychology

This study examined the impact of the COVID-19 pandemic on a national sample of adolescents and young adults (AYA) with spina bifida (SB) and parents of youth with SB. AYA with SB (15–25; n = 298) and parents of children with SB (n = 200) were recruited to complete an anonymous, online survey in English or Spanish. Participants provided information about demographic and condition characteristics, as well as their technology access and use for behavioral health care. They also completed the COVID-19 Exposure and Family Impact Survey (CEFIS), which includes Exposure, Impact, and Distress subscales. Exploratory correlations and t-tests were used to examine potential associations between CEFIS scores and demographic, medical, and access characteristics. Qualitative data from the CEFIS were analyzed using thematic analysis.

Impact of COVID-19 on the mental health and well-being of Latinx caregivers of children with intellectual and developmental disabilities

AUTHOR(S)
Yolanda Suarez-Balcazar; Mansha Mirza; Vanessa L. Errisuriz (et al.)

Published: July 2021   Journal: International Journal of Environmental Research and Public Health
The COVID-19 pandemic has impacted the entire world in unprecedented ways. However, populations that have had a history of marginalization have experienced a more profound impact. One such group is Latinx families of children with intellectual and developmental disabilities (IDD) in the Unites States. This study used a mixed methods approach to explore the impact of the pandemic on the mental health and well-being of Latinx caregivers of children with IDD. Specifically, it (1) identified which social determinants of health are correlated with maternal caregivers perceived general health, mental health, and well-being; (2) explored the impact of the pandemic on families’ overall eating and physical activity routines; and (3) identified emergent themes from caregivers’ experiences during the pandemic.
Assessment of have problems and care burdens of mothers with handicapped children in COVID-19 pandemic

AUTHOR(S)
Melike Yavaş Celik

Published: July 2021   Journal: Social Work in Public Health
In the study, it was aimed to evaluate the problems and care burden of mothers who have a handicapped child in the pandemic process. The population of the descriptive study consisted of the mothers of the children who came to the rehabilitation center (n = 230), and the sampling consisted of the mothers who wanted to participate in the study (n = 216). The research data were collected through social media and the data were analyzed using the mean, standard deviation, percentage and frequency measurements, independent sample t test, Oneway anova, Kruskal wallis tests in the SPSS program. In the study, Burden Interview Scale (BIS) scores of the mothers who stated that the educational status of their child was adversely affected in the pandemic, stated that they were worried that there would be someone to take care of my child if I died, stated that the child’s health checks were interrupted, stated that they did not send their child to school due to the fear of COVID-19, and reported that they had a problem in reaching the health institution was determined were significantly higher than. Mothers with handicapped children stated that their children experienced difficulties in important situations such as health checks and educations during the pandemic period. In addition, it was found that the care burden of these mothers was higher. During the pandemic period, it is necessary to make and support new regulations in accordance with the disability of these special children with state policies as well as healthcare professionals.
Boom boom in the zoom zoom room: online music therapy with children and adolescents with visual impairment

AUTHOR(S)
Bill Ahessy

Published: July 2021   Journal: British Journal of Visual Impairment
The COVID-19 pandemic created a major transformation in the delivery of music therapy services worldwide as they moved online. Telehealth research is in its infancy and online work with children and adolescents with visual impairment has yet to be investigated. This survey-based study explored the experiences and perceptions of parents of children and adolescents with visual impairment (n = 11) who engaged in online music therapy.
1 - 15 of 32

UNICEF Innocenti's Children and COVID-19 Library is a database collecting research from around the world on COVID-19 and its impacts on children and adolescents.

LEARN MORE ABOUT THE DATABASE

Read the latest quarterly digest on children and disabilities.

The second digest discussed children and violence during the pandemic.

The first digest covers children and youth mental health under COVID-19.

Subscribe to updates on new research about COVID-19 & children

SIGN UP TO OUR NEWSLETTER

Share:

facebook twitter linkedin google+ reddit print email
Campaign Campaign

COVID-19 & Children: Rapid Research Response

UNICEF Innocenti is mobilizing a rapid research response in line with UNICEF’s global response to the COVID-19 crisis. The initiatives we’ve begun will provide the broad range of evidence needed to inform our work to scale up rapid assessment, develop urgent mitigating strategies in programming and advocacy, and preparation of interventions to respond to the medium and longer-term consequences of the COVID-19 crisis. The research projects cover a rapid review of evidence, education analysis, and social and economic policies.