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Anna Erica Fäldt; Filippa Klint; Georgina Warner (et al.)
The impact of the COVID-19 pandemic on people with disabilities has been described as a ‘triple jeopardy’. Not only have they experienced the negative social impacts of disease control measures, but access to required health services has been affected, and, not least, they are at increased risk of severe outcomes from COVID-19. This study aimed to determine how children with disabilities have experienced the pandemic in Sweden and its impact on their lives.Six children (5–13 years) were interviewed via video conferencing. An interview guide was adapted based on the children’s communicative abilities and included augmentative and alternative communication support. Reflective field notes were included in the analysis. The data were analysed using qualitative content analysis.
Catherine Smith; Massimiliano Tani; Sophie Yates (et al.)
Felipe Retamal-Walter; Monique Waite; Nerina Scarinci
This paper aimed to explore and describe families’ and professionals’ perspectives about building and maintaining engagement in telepractice early intervention (EI). Individual semi-structured reflexive interviews were conducted with Australian families of young children with communication disability receiving telepractice EI and their treating professionals. These interviews were conducted within one day of a telepractice EI session and analysed using thematic analysis.
Johanna W. Hoefnagels; Annelieke B. Schoen; Sabine E. I. van der Laan (et al.)
Rocío Palomo-Carrión; Rita-Pilar Romero-Galisteo; Helena Romay-Barrero (et al.)
The aim of this study was to analyze the impact of the lack of face-to-face schooling during the COVID-19 confinement on the family quality of life of children aged 3–6 years with hemiplegia, obstetrical brachial palsy, and typical development. An observational and cross-sectional study, using an online survey hosted in Google Forms from October to December 2020, was performed in families with children with infantile hemiplegia, obstetrical brachial palsy, and typical development aged 3–6 years living in Spain. The quality of life and family impact (measured through Pediatric Quality of Life Questionnaires, PedsQL™) were evaluated, as well as the affected upper limb side, the presence of other associated problems, the parents’ job, lack of use of the affected upper limb, and the type of online intervention using different channels: phone calls, emails, and video calls. Family expectations on the treatment and on their acquired capacity to solve problems related to their children were also measured.
Murat Özer; Nevzat Başkaya; İlknur Bostancı
This study aimed to determine the differences in attitudes and views towards influenza and pneumococcal vaccines in parents of children with asthma during the COVID-19 pandemic. Asthmatic children in the 6–18 age group who were admitted to the pediatric allergy clinic of our hospital between October 1, 2020 and February 31, 2021 were included in the study. The parents were given a questionnaire asking about their demographics and medical history. Their attitudes and thoughts towards these two vaccines, both before and during the pandemic, and their COVID-19 stories were questioned.
Chiaki Hayano; Shuichi Shimakawa; Miho Fukui (et al.)
This study investigated the impact of COVID-19 pandemic school closures on the mental health of school students with chronic diseases. Questionnaires were distributed from 4th-9th grade students diagnosed with chronic diseases at Osaka Medical College Hospital and their parents or caregivers. Questionnaires from 286 families were returned by mail after schools reopened. The students were divided into the “psychosomatic disorder” group (P, n = 42), “developmental disorder” group (D, n = 89), and “other disease” group (O, n = 155). Using students’ self-report on the Questionnaire for Triage and Assessment with 30 items (QTA30), this study assessed the proportion of students having a high risk of psychosomatic disorder in three groups. It investigated how the students requiring the support of somatic symptom (SS) felt about school during school closure. Further, using parents’ and caregivers’ answers, SS scores were calculated before and during school closure and after school reopening.
Hala Abdullatif; Wafaa Elakel; Sherif Baroudy (et al.)
The coronavirus disease 2019 (COVID-19) pandemic has had considerable effects on health care services given the need for re-allocation of resources and interruption of medical care. COVID-19 poses a challenge to patients with liver disease who are at risk of infection and more severe disease course. The current study aimed to assess the incidence of COVID-19 in children with liver diseases and evaluate the extent to which health care delivery was affected during lockdown. This cross-sectional analytical study conducted at the Pediatric Hepatology Unit, Cairo University Children’s Hospital utilized a questionnaire to determine the incidence of COVID-19 in patients with liver diseases and the impact of COVID-19 on the patients’ liver condition and health care service delivery. A presumed score was implemented to identify patients with probable COVID-19.
Pouneh Amir Yazdani; Marie-Lou St-Jean; Sara Matovic (et al.)
Kristen M. Allison; Danielle E. Levac (et al.)
The COVID-19 pandemic caused wide-scale disruptions to therapy services for children with disabilities in the United States. This study evaluated changes in therapy service delivery during the first four months of the pandemic, examined the impact of these changes on children’s functioning, and analyzed factors predicting loss of in-person services and receipt of teletherapy services.
Aline Wauters; Tine Vervoort; Karlien Dhondt (et al.)
The COVID-19 pandemic and associated quarantine measures highly impacted parental psychological well-being. Parents of children with chronic diseases might be specifically vulnerable as they already face multiple challenges to provide adequate care for their child. The research questions of the current study were twofold: (a) to examine whether parents of children with a chronic disease experienced more anxiety and depression compared to parents of healthy children and (b) to examine a series of risk factors for worsened well-being (i.e., depression, anxiety, and sleep problems), such as sociodemographic variables, COVID-19-specific variables (i.e., financial worries, living space, and perceived quality of health care), and parental psychological experiences (i.e., parental burn-out and less positive parenting experiences). Parents of children with a chronic disease (i.e., the clinical sample; N = 599 and 507 for Research Questions 1 and 2, respectively) and parents of healthy children (i.e., the reference sample: N = 417) filled out an online survey.
Heidi L. Fritz
Nisreen Al Awaji; Monira ldhahi; Shahnaz Akil (et al.)
Sarah M. Mitchell
Vulnerable children with medical complexity are silent victims of the COVID-19 pandemic, impacted by lack of resources and sick caregivers. This article examines ways in which the pandemic has increased the significant difficulties already experienced by these patients and their families. Increased awareness will lead to improvement in the disparities experienced by this population and improve the ability of healthcare providers to care for them. The number of children living with medical complexity is rapidly increasing. They face unique circumstances which can lead to compromise in care. This population is especially at risk for complications related to COVID, so may have a more prolonged admission with more morbidities. Children of ethnic minorities are also more impacted by severe illness and death. Finally, access to palliative care has been limited, which is a huge part in caring for these children who have life-long medical care needs.
Mana Mann; Julia E. McMillan; Ellen J. Silver (et al.)
UNICEF Innocenti's Children and COVID-19 Library is a database collecting research from around the world on COVID-19 and its impacts on children and adolescents.
Read the latest quarterly digest on children and disabilities.
The second digest discussed children and violence during the pandemic.
The first digest covers children and youth mental health under COVID-19.
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COVID-19 & Children: Rapid Research Response
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