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AUTHOR(S) Mel Michaud; Irene Cihon Dietz
This article seeks to review the current knowledge of the SARS-CoV-2 virus and the health effects for children and youth with special health care needs (CYSHCN). COVID-19, an infectious disease caused by the severe acute respiratory syndrome coronavirus 2 (SARS-CoV-2), became a major pandemic in 2020. Recognition of the disease could be difficult, as symptoms in children are at times different than adults and can mimic other common childhood viral infections. Children with underlying medical conditions did make up a higher proportion of those hospitalized, but also were affected in other ways including loss of nursing support, missed education and rehabilitative services, and increased stress for themselves and their families, affecting mental health in this vulnerable population. This review seeks to address what is currently known about the overall effects on CYSHCN and their families, and identify gaps in research, including the implementation of health care systems, and possible suggestions for change in the educational and community supports for this group of individuals. Ongoing analysis of large national and international data sets, as well as smaller reports based on specific congenital anomaly, genetics disease, and acquired childhood illness, and then attention to local resources and family resilience is still necessary.
AUTHOR(S) Kapil Sikka
AUTHOR(S) Dilşad Yıldız Miniksar; Betül Kılıç; İsmail Kaytan (et al.)
This study aimed to compare the levels of state and trait anxiety in pediatric patients with epilepsy and healthy controls during the COVID-19 outbreak in Turkey. In this study, the state (STAI-I) and trait (STAI-II) anxiety scales were applied to patients between the ages of 10-17 years that had been followed due to epilepsy and were in quarantine. Anxiety status and potential risk factors were compared with healthy age and gender-matched control group.
AUTHOR(S) Julia M. Göldel; Clemens Kamrath; Kirsten Minden (et al.)
AUTHOR(S) Nur Rochmah; Luh Ayu Asri Wijani; Muhammad Faizi (et al.)
Children with type-1 diabetes mellitus (T1DM) often experience emotional and behavioral problems such as anxiety and depression. Social restrictions during the COVID-19 pandemic caused social restrictions and limited access to healthcare facilities, which may have worsened the metabolic control. This study aimed to analyze the behavioral problems among type 1 diabetes mellitus children with good and poor metabolic control during COVID-19 pandemic. This cross-sectional study was conducted in January - August 2021 in the Endocrine Outpatient Clinic of General Hospital Dr. Soetomo Surabaya. Type-1-DM children who fulfilled the inclusion criteria were divided into two groups based on metabolic control, including good (HbA1C ≤ 8) and poor (HbA1C > 8). The Pediatric Symptom Checklist-17 (PSC-17) was used as a screening tool with the domain internalizing problems (IP), externalizing problems (EP), and attention problems (AP). The data were analyzed using Pearson or Spearman test with Statistical Product and Service Solution (SPSS) version 18.0.
AUTHOR(S) Zhihao Wang; Xiqin Fang; Tao Han (et al.)
This study aimed to investigate the effects of the coronavirus disease 2019 4 (COVID-19) vaccine on epileptic seizures, as well as its adverse effects, in children with epilepsy (< 18 years). This anonymous questionnaire study involved a multicenter prospective survey of outpatients and inpatients with epilepsy (<18 years) registered in epilepsy clinics in 8 hospitals in six cities of Shandong Province.
AUTHOR(S) Nicole Collaço; Ashley Gamble; Jessica Elizabeth Morganhley Gamble (et al.)
This paper aimed to explore the experiences, information and support needs of parents/caregivers of children with cancer and how these changed as the COVID-19 pandemic evolved. Online surveys containing closed and free-text questions on experiences, information and support needs were completed at four time points (between April 2020 and October 2021) during the COVID-19 pandemic. Descriptive statistics of closed items and content analysis of qualitative data were conducted.
AUTHOR(S) J. K. Paternostro; A. Kakolu; W. Boyd (et al.)
AUTHOR(S) Sally Waheed Elkhadry; Tahany Abd El Hameed Salem; Abdelhamid Elshabrawy (et al.)
AUTHOR(S) Yifei Ma; Nianqi Liu; Guanqing Zhong (et al.)
AUTHOR(S) Miriam Gonzalez; Jinan Zeidan; Jonathan Lai (et al.)
Little is known about the experience of receiving in-person and virtual clinical health care services during the COVID-19 pandemic for Canadian children with developmental disabilities and delays facing multiple layers of vulnerability (e.g., low income, low educational attainment families). It examined the relationship between socio-demographic factors and the receipt of these services (physical and mental health services) during COVID-19 for Canadian children with these conditions. Data collected in Canada for the Global Report on Developmental Delays, Disorders and Disabilities were used. The survey: (1) was developed and disseminated in collaboration with caregivers of children with disabilities, (2) included topics such as response to the pandemic and receipt of services and supports, and (3) documented the experiences of a non-random convenience sample of caregivers of children (any age) with these conditions during and prior to the pandemic.
AUTHOR(S) Salih Rakap; Meryem Vural-Batik; Sinan Kalkan (et al.)
The purpose of this study was to investigate the impact of the COVID-19 pandemic on the quality of life of families of children with disabilities and the mediating roles of perceived social support, perceived parental self-efficacy, psychological health, psychological resilience, and perceived family burden on this relationship. Children with disabilities and their families are among the most affected populations from the restrictions imposed to prevent the spread of COVID-19 virus, as the special education and rehabilitation services they had been receiving were interrupted. A correlational survey design was used to collect data from 824 parents of children with disabilities in Turkey. Path analysis was used to examine the direct and indirect effects of COVID-19 on family quality of life.
AUTHOR(S) Sally Lindsay
AUTHOR(S) Vineeta Singh; Nirali F. Sanghvi; Priyanka Aggarwal (et al.)
Similar to normal pediatric population, children with thalassemia are at risk of acquiring COVID-19 infection. Theoretically, they are at higher risk of severe infection because of comobidities associated with chronic transfusions. This study is an attempt to find out the awareness of COVID-19 vaccination in transfusion dependent thalassemia patients attending thalassemia clinic at our institute. It is an observational study consisting of 21 children with transfusion dependent thalassemia from 12 years to 18 years of age attending the thalassemia clinic between May to July 2022. Awareness and the status of COVID-19 vaccination in children and their families was assessed using a questionnaire.
AUTHOR(S) Hemat Mostafa Amer; Elham S. Elzyen; Doaa A. Zayed (et al.)
UNICEF Innocenti's Children and COVID-19 Library is a database collecting research from around the world on COVID-19 and its impacts on children and adolescents.
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