Inclusion with Protection
Obtaining informed consent when conducting research with adolescents
Publication date: 2017-05
Publication series:
Innocenti Research Briefs
No. of pages: 18
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Abstract
Written primarily for UNICEF staff, funders of research, policy-makers, ethics committee members and researchers, this brief intends to provide principles and approaches to the common challenges in conducting research with adolescents. It emphasizes the value of research with adolescents and discusses at length the importance of balancing inclusion and protection, concluding with a set of ethical ground rules and recommendations for research with adolescents and examples on how to apply them.
The brief is one of seven on research methodologies designed to expand and improve the conduct and interpretation of research on adolescent health and well-being in low- and middle-income countries (LMICs). Building on the recent Lancet Commission on Adolescent Health and Wellbeing, these briefs provide an overview of the methodological quality of research on adolescents. They cover topics including: indicators and data sources; research ethics; research with disadvantaged, vulnerable and/or marginalized populations; participatory research; measuring enabling and protective systems for adolescent health; and economic strengthening interventions for improving adolescent well-being.
Available in:
English
More in this series: Adolescent Research Briefs
Publication
Improving the Methodological Quality of Research in Adolescent Well-being
This brief introduces the methodological series Conducting Research with Adolescents from low- and middle-income countries (LMICs), outlining key research themes, intervention types, and their associated methodological implications. It highlights adolescence as a critical phase within the life course and a period of biological and social transition that is itself undergoing change. It makes the case that new understandings from neuroscience have important implications for programming; addressing social and structural determinants is crucial to improving adolescent well-being; inter-sectoral and comprehensive multi-component action is required, as is matching action to need; and gender and equity should always be considered in research, programmes and policy.
Publication
Data and Indicators to Measure Adolescent Health, Social Development and Well-being
This brief focuses on quantitative data and indicators to measure adolescent health, social development and well-being. It covers: the principles of good indicator definition; common use of indicators; examples of indicators for adolescent health and social development; existing global data to describe - and populate indicators of - adolescent health and social development; and how to improve data collection efforts.
Publication
Research with Disadvantaged, Vulnerable and/or Marginalized Adolescents
Disadvantaged, vulnerable and/or marginalized adolescents (DVMAs) are individuals aged 10–19, who are excluded from social, economic and/or educational opportunities enjoyed by other adolescents in their community due to numerous factors beyond their control. This brief summarizes the health and well-being inequities experienced by DVMAs and the need for research with this group. It reviews the challenges and barriers to their inclusion in research; shares practical implications and best practices for their inclusion in research; and addresses ethical challenges and approaches to research with DVMAs.
Publication
Adolescent Participation in Research: Innovation, rationale and next steps
Undertaking youth-led participatory action research is an increasingly popular approach to advancing adolescent engagement and empowerment. This research - led by adolescents themselves - promotes social change and improves community conditions for healthy development. This brief reviews the theoretical and empirical rationales for youth-led participatory action research, its key principles, phases, practical implications and ethical issues.