Publications

Evidence increasingly shows applied behavioural science can positively impact childhood development and contribute to reducing inequalities. However, it is important for practitioners to reflect on the ethical considerations. For example, are you confident that the intervention is unlikely to have unintended harmful consequences? Or, is it easy for child recipients to opt out of the intervention?

To better understand these impacts, we consulted children in Australia, Chile and Ghana, interviewed subject matter experts and practitioners, and conducted a targeted literature review. This paper distils our findings and provides examples of how evidence-based interventions can meaningfully impact children’s futures. It is accompanied by a toolkit to guide and support practitioners through key ethical decision points.

This research brief details the main ethical challenges and corresponding mitigation strategies identified in the literature with regard to the ethical involvement of children with disabilities in evidence generation activities. The findings detailed in this summary brief are based on a rapid review of 57 relevant papers identified through an online search using a systematic approach and consultation with experts.

 

This paper provides an overview of the key issues drawn from the literature reviewed and suggests established and potential mitigation strategies that could improve ethical practices when involving children with disabilities in evidence generation activities (for a summary, see Appendix 1). More evidence generation activities with this group of children are urgently needed, and it is important that conventional and existing ethical practices used with children are further developed to embrace disability inclusion. This will encourage the realization of children’s right to participate and be heard, and ensure that policy and practice are informed by the perspectives and concerns of children with disabilities. Importantly, this approach can support a wider agenda for the greater inclusion in society of children with disabilities.

The 30 narratives in this publication showcase the range and depth of the work UNICEF Innocenti has undertaken over three decades of existence. In everything we do, our overarching objective is to seek answers to the most pressing challenges for children, and to make the Convention of the Rights of the Child a living reality for every child.

In an era of increasing dependence on data science and big data, the voices of one set of major stakeholders – the world’s children and those who advocate on their behalf – have been largely absent. A recent paper estimates one in three global internet users is a child, yet there has been little rigorous debate or understanding of how to adapt traditional, offline ethical standards for research involving data collection from children, to a big data, online environment (Livingstone et al., 2015). This paper argues that due to the potential for severe, long-lasting and differential impacts on children, child rights need to be firmly integrated onto the agendas of global debates about ethics and data science. The authors outline their rationale for a greater focus on child rights and ethics in data science and suggest steps to move forward, focusing on the various actors within the data chain including data generators, collectors, analysts and end-users. It concludes by calling for a much stronger appreciation of the links between child rights, ethics and data science disciplines and for enhanced discourse between stakeholders in the data chain, and those responsible for upholding the rights of children, globally.

This working paper identifies and explores the issues that should be considered when undertaking ethical research involving children in humanitarian settings. Both the universal (i.e. relevant to all research involving children) and specific ethical issues that may arise when involving children in research in humanitarian settings are examined. This is undertaken through a review of the literature, relevant case studies, and a reflection on the ethical issues highlighted in UNICEF’s Procedure for Ethical Standards in Research, Evaluation, Data Collection and Analysis (the Ethics Procedure). The key findings of this overview highlight that many of the ethical issues that are present in other settings remain relevant and applicable in the context of humanitarian settings. These include: an institution’s capacity to appropriately and respectfully engage children in research, understanding power relations, securing informed consent and assent, ascertaining harms and benefits, maintaining privacy and confidentiality, and ensuring appropriate communication of findings.

The paper provides an examination of the relevance of ethics to poverty reduction. It argues that linking the shared values that define the social arrangements and institutions, which we refer to as ‘ethical perspectives’, to the emerging welfare institutions addressing poverty in developing countries provides a window into these processes of justification at a more fundamental level. By ethics of poverty the authors refer to the most basic arguments and processes used to justify how and why we assist people living in poverty. Given the extent to which poverty reflects injustice, they argue it is appropriate to consider poverty in the context of ethics. Drawing on the recent expansion of social assistance in Brazil, South Africa and Ghana, the paper shows that ethical perspectives are relevant to our understanding of the evolution of anti-poverty policy.

Le recueil d’ERIC sert d’outil pour générer la pensée critique, le dialogue introspectif et la prise de décision éthique ainsi que pour contribuer à l’amélioration de la pratique de recherche impliquant des enfants à travers les différentes disciplines, les points de vue théoriques et méthodologiques et les contextes internationaux. L’accent est mis sur la nécessité d’une approche introspective de l’éthique de la recherche qui favorise les relations dynamiques et respectueuses entre chercheurs, enfants, familles, collectivités, organismes de recherche et autres intervenants.

This compendium is part of an international project entitled Ethical Research Involving Children. The project has been motivated by a shared international concern that the human dignity of children is honoured, and that their rights and well-being are respected in all research, regardless of context. To help meet this aim, the compendium acts as a tool to generate critical thinking, reflective dialogue and ethical decision-making, and to contribute to improved research practice with children across different disciplines, theoretical and methodological standpoints, and international contexts. Emphasis is placed on the need for a reflexive approach to research ethics that fosters dynamic, respectful relationships between researchers, children, families, communities, research organizations, and other stakeholders.