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Stephen Thompson; Mariah Cannon; Mary Wickenden
This paper provides an overview of the key issues drawn from the literature reviewed and suggests established and potential mitigation strategies that could improve ethical practices when involving children with disabilities in evidence generation activities (for a summary, see Appendix 1). More evidence generation activities with this group of children are urgently needed, and it is important that conventional and existing ethical practices used with children are further developed to embrace disability inclusion. This will encourage the realization of children’s right to participate and be heard, and ensure that policy and practice are informed by the perspectives and concerns of children with disabilities. Importantly, this approach can support a wider agenda for the greater inclusion in society of children with disabilities.
Shivit Bakrania; Cirenia Chávez; Alessandra Ipince; Matilde Rocca; Sandy Oliver; Claire Stansfield; Ramya Subrahmanian
This protocol details the aims, scope and methodology used for the rapid review titled: “Impacts of Pandemics and Epidemics on Child Protection: Lessons learned from a rapid review in the context of COVID-19."
Jacobus de Hoop; Margaret W. Gichane; Valeria Groppo; Stephanie Simmons Zuilkowski
Gabrielle Berman; Karen Carter; Manuel Garcia Herranz; Vedran Sekara
Balancing the need to collect data to
support good decision-making versus the need to protect children from harm
created through the collection of the data has never been more challenging than
in the context of the global COVID-19 pandemic. The response to the pandemic
has seen an unprecedented rapid scaling up of technologies to support digital
contact tracing and surveillance. As the pandemic progresses, we are also
likely to see the emergence of more applications that link datasets as we seek
to better understand the secondary impacts of the pandemic on children and
This working paper explores the
implications for privacy as the linking of datasets increases the likelihood
that children will be identifiable and consequently, the
opportunities for (sensitive) data profiling. It
also frequently involves making data available to a broader set of users or
While it is recognized that reuse of
unidentifiable data could potentially serve future public health responses and
research, the nature of, access to and use of the data now and in future
necessitate accountability, transparency and clear governance processes. It
requires that these be in place from the outset. These are needed to ensure
that data privacy is protected to the greatest degree possible and that the
limitations to the use of these data are clearly articulated.
Nyasha Tirivayi; Dominic Richardson; Maja Gavrilovic; Valeria Groppo; Lusajo Kajula; Elsa Valli; Francesca Viola
This rapid review seeks to inform the initial and long-term public policy responses to the COVID-19 pandemic, by assessing evidence on past economic policy and social protection responses to health and economic crises and their effects on children and families. The review focuses on virus outbreaks/emergencies, economic crises and natural disasters, which, like the COVID-19 pandemic, were 'rapid' in onset, had wide-ranging geographical reach, and resulted in disruption of social services and economic sectors, without affecting governance systems. Evidence is also drawn from the HIV/AIDS pandemic, due to its impacts on adult mortality rates and surviving children.
The available evidence on the effects of economic policy and social protection responses is uneven across outcomes, regions, and type of policy response as a large body of literature focused on social assistance programmes. Future research on the COVID-19 pandemic can prioritize the voices of children and the marginalized, assess the effects of expansionary and austerity measures, examine the role of design and implementation, social care services, pre-existing macro-level health, demographic and health conditions and the diverse regional health and economic impacts of the pandemic. The paper also provides key lessons for public policy responses to the COVID-19 pandemic.
Alessandro Carraro; Yekaterina Chzhen
Averi Chakrabarti; Sudhanshu Handa; Luisa Natali; David Seidenfeld; Gelson Tembo
Alberto Posso; Stephen C. Smith; Lucia Ferrone
Lucia Ferrone; Andrea Rossi; Zlata Bruckauf
Katia Hujo; Maggie Carter