Ethical research and children

There are significant ethical implications in the adoption of technologies and the production and use of the resulting data for evidence generation. The potential benefits and opportunities need to be understood in conjunction with the potential risks and challenges. When using social media to directly engage children and their communities, or when establishing partnerships with these organizations for data collection and analysis, adoption of these technologies and their resultant data should not be exclusively driven by short-term necessity but also by the long-term needs of our younger partners. When engaging with social media and indeed most technology, thoughtfulness, reflection and ongoing interrogation is required. This paper examines the benefits, risks and ethical considerations when undertaking evidence generation: (a) using social media platforms and (b) using third-party data collected and analysed by social media services. It is supplemented by practical tools to support reflection on the ethical use of social media platforms and social media data.

In an era of increasing dependence on data science and big data, the voices of one set of major stakeholders – the world’s children and those who advocate on their behalf – have been largely absent. A recent paper estimates one in three global internet users is a child, yet there has been little rigorous debate or understanding of how to adapt traditional, offline ethical standards for research involving data collection from children, to a big data, online environment (Livingstone et al., 2015). This paper argues that due to the potential for severe, long-lasting and differential impacts on children, child rights need to be firmly integrated onto the agendas of global debates about ethics and data science. The authors outline their rationale for a greater focus on child rights and ethics in data science and suggest steps to move forward, focusing on the various actors within the data chain including data generators, collectors, analysts and end-users. It concludes by calling for a much stronger appreciation of the links between child rights, ethics and data science disciplines and for enhanced discourse between stakeholders in the data chain, and those responsible for upholding the rights of children, globally.

This working paper identifies and explores the issues that should be considered when undertaking ethical research involving children in humanitarian settings. Both the universal (i.e. relevant to all research involving children) and specific ethical issues that may arise when involving children in research in humanitarian settings are examined.

This compendium is part of an international project entitled Ethical Research Involving Children. The project has been motivated by a shared international concern that the human dignity of children is honoured, and that their rights and well-being are respected in all research, regardless of context.